Ms Hummelshoj is the publisher/editor-in-chief
of www.endometriosis.org,
which is the global forum for evidence based facts on
endometriosis as well as the platform for the exchange
of news and information amongst clinicians, scientists,
and women with the disease.
She is the Secretary General of the World Endometriosis
Society, an active member of the ESHRE and ASRM Special
Interest Groups on Endometriosis, and is on
the faculty of F1000 for Medicine. In July 2009 she was appointed Special Advisor to The Journal of Endometriosis.
Lone Hummelshøj co-founded Endometriose
Foreningen (the Danish Endometriosis Society) in 1997,
which she chaired for its first seven years. Working
with politicians she was instrumental in changing legislation
in Denmark, where national referral guidelines are now
in place, which allow women with endometriosis to be
referred to one of two designated national centres which
specialise in the treatment of endometriosis –
the first (and, so far, only!) country in the world to implement such guidelines.
Ms Hummelshoj has presented on the
impact of endometriosis, and the need for patient centred
care, at international conferences in Europe, North
and South America, Africa, and Austral-Asia for the past decade, and is
the author of numerous papers and chapters on the disease.
She works with national groups to build strong patient
support.
Since 2004 she has worked with Members of the
European Parliament to increase awareness of the disease
and raise the visibility of endometriosis and its impact
on quality of life, and she made history, when endometriosis
was added to the 2006 working agenda of the European
Commission, and when it subsequently funded an endometriosis project through its Public Health Programme in May 2007.
Since 1996 Ms Hummelshoj has run her own business development
consultancy firm from London, England, where she specialises
in business development, strategic marketing, project
management, and facilitation. Prior to starting her
own company, she was a senior sales manager with IBM,
working with some of its largest clients within the
financial services industry in Europe.
Lone Hummelshoj was appointed Chief
Executive of the World Endometriosis Research Foundation
in October 2006.
02/2010
